Good thoughts needed
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Good thoughts needed
So, my husband has had a shitload of health problems for several years now.
Started with a stroke-which started because even with insurance the blood pressure medicine wasn't affordable, and rather than tell me, he went without. *bangs head against wall*. His first day home from rehab, he went into congestive heart failure, and had to be kept in an induced coma. Kidney damage, severe neuropathy in the feet. A stent in his heart.
A few years later, diabeties.
More heart failure, milder this time. Always bounces back. On disability, which meant he was a stay at home dad. November, kidney failure finally became bad enough that he had to start thrice weekly dialysis. His doctor reccomended him for the transplant list.
Transplant list means a ton of testing. They have to be 100% sure you're healthy enough. Daughter and I both want to give a kidney, assuming we match-he's unsure about that. Normal wait time in our region is 3 years, although it's possible to get the call at any time.
The last round of testing, they found an anyurism in his heart.
On the 8th he sees a specialist about it, to find out more.
I am scared shitless. All I know about anyurisms is that you can go at any time, instantly.
A lesser fear is that it will make him unsuitable for a transplant, and how long can you live on dialysis?
I'm afraid to look any of this up. I'm going with him tuesday, even though he says I don't need to,
He's bounced back and kept on going from so much....
I'd hoped, that me or kiddo would be a match, and that we'd plan the transplant for summer when she was home from school.I know, overly optimistic. Now I'm just terrified, and keeping a positive face for him.
So, good thoughts, please?
Started with a stroke-which started because even with insurance the blood pressure medicine wasn't affordable, and rather than tell me, he went without. *bangs head against wall*. His first day home from rehab, he went into congestive heart failure, and had to be kept in an induced coma. Kidney damage, severe neuropathy in the feet. A stent in his heart.
A few years later, diabeties.
More heart failure, milder this time. Always bounces back. On disability, which meant he was a stay at home dad. November, kidney failure finally became bad enough that he had to start thrice weekly dialysis. His doctor reccomended him for the transplant list.
Transplant list means a ton of testing. They have to be 100% sure you're healthy enough. Daughter and I both want to give a kidney, assuming we match-he's unsure about that. Normal wait time in our region is 3 years, although it's possible to get the call at any time.
The last round of testing, they found an anyurism in his heart.
On the 8th he sees a specialist about it, to find out more.
I am scared shitless. All I know about anyurisms is that you can go at any time, instantly.
A lesser fear is that it will make him unsuitable for a transplant, and how long can you live on dialysis?
I'm afraid to look any of this up. I'm going with him tuesday, even though he says I don't need to,
He's bounced back and kept on going from so much....
I'd hoped, that me or kiddo would be a match, and that we'd plan the transplant for summer when she was home from school.I know, overly optimistic. Now I'm just terrified, and keeping a positive face for him.
So, good thoughts, please?
Re: Good thoughts needed
Damn. That's a very, very unfortunate set of circumstances.
Good thoughts? You've got 'em! I'll be rooting for you, all three of you.
A person can live for quite a long time on dialysis, but the long-time survival rates are a good deal better if you get a kidney transplant. Having other, major medical issues at the same time... doesn't help.
Good thoughts? You've got 'em! I'll be rooting for you, all three of you.
A person can live for quite a long time on dialysis, but the long-time survival rates are a good deal better if you get a kidney transplant. Having other, major medical issues at the same time... doesn't help.
Re: Good thoughts needed
Yeah. We'd been hopeful, because, despite everything, he was reccomended for the program by his doctors, that they thought he was still a good candidate for it. But this latesr piece of news...
Thanks, Dave.
Thanks, Dave.
- Hansontoons
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Re: Good thoughts needed
Many good thoughts, positive waves, electronic hugs with a nice, warm hum.
And Jasper dog sends best wishes...
And Jasper dog sends best wishes...
Re: Good thoughts needed
*ruffles Jasperdog's ears*
Re: Good thoughts needed
Strong Support Delivered. Hang in there...
- Hansontoons
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Re: Good thoughts needed
Hers loves the ear ruffles, chest scratches, belly rubs, loves in general. And loves back with dogsmiles.chicgeek wrote:*ruffles Jasperdog's ears*
Hopefully you have a sweet soul that can give love and comfort unconditionally.
- GlytchMeister
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Re: Good thoughts needed
From what I know about aneurysms in or near the heart, there are a few types... only one is as bad as you are afraid.
The aneurysms you're thinking of are the ones in the brain - when one of those pop, the unfortunate victim can be dead before they hit the ground.
If you want, you can tell me which type he has... He's probably not as bad as you think regarding this.
There is hope.
...
Y'all live too damn far away. I can't bring comfort food to anyone.
The aneurysms you're thinking of are the ones in the brain - when one of those pop, the unfortunate victim can be dead before they hit the ground.
If you want, you can tell me which type he has... He's probably not as bad as you think regarding this.
There is hope.
...
Y'all live too damn far away. I can't bring comfort food to anyone.
He's mister GlytchMeister, he's mister code
He's mister exploiter, he's mister ones and zeros
They call me GlytchMeister, whatever I touch
Starts to glitch in my clutch!
I'm too much!
He's mister exploiter, he's mister ones and zeros
They call me GlytchMeister, whatever I touch
Starts to glitch in my clutch!
I'm too much!
- Just Old Al
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Re: Good thoughts needed
Good thoughts sent - definitely goin' with the positive waves.
As Glytch said, there are many types - and once it is repaired then life is good. I am not a doctor nor do I play one on TV, but I don;t see where a simple mechanical repair of that type pwu;ld negate his suitability for a transplant. This is a bleedin' tyre patch...
Al
As Glytch said, there are many types - and once it is repaired then life is good. I am not a doctor nor do I play one on TV, but I don;t see where a simple mechanical repair of that type pwu;ld negate his suitability for a transplant. This is a bleedin' tyre patch...
Al
"The Empire was founded on cups of tea, mate, and if you think I am going to war without one you are sadly mistaken."
Re: Good thoughts needed
"Tyre patch". Ha! Thanks, Al, I needed that grin!
The edge is off the panic. I can't fret at home, need to be positive for him, you know?
Anyurism is a scary word. And I refuse to look online, and find more fear fodder.
Panic squashed down, y'all got my first 'ohshit' response to the news.
I'll fret, and we'll know more on the 8th.
I mean, they didn't say 'get thee to a hospital RIGHT NOW', so that's good.
HUGS.
Thanks, all.
The edge is off the panic. I can't fret at home, need to be positive for him, you know?
Anyurism is a scary word. And I refuse to look online, and find more fear fodder.
Panic squashed down, y'all got my first 'ohshit' response to the news.
I'll fret, and we'll know more on the 8th.
I mean, they didn't say 'get thee to a hospital RIGHT NOW', so that's good.
HUGS.
Thanks, all.
- Catawampus
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Re: Good thoughts needed
Yeah, television and movies tend to hype up the scariness factor of aneurysms for dramatic sake. While having one is certainly not a good thing, it's also not something to go into total despair over. It's just a swelling in some part of the circulatory system. Many, many people go for years with one and never even realise they have one, and treatment for it is well worked-out and practiced. Even in the worst-case scenario where it ruptures, it's not a situation where all hope is lost. People with ruptured aneurysms often have plenty of time to notice that something is wrong, have an ambulance called (or many times even call for one themselves), get taken to the hospital, and undergo treatment. So it is certainly something to be concerned about and keep an eye on, and it can indeed be dangerous, but it's far from being any sort of portent of unavoidable instant doom.
I knew one girl who had a severe birth defect in her heart, and two entire chambers of her heart catastrophically burst with absolutely no warning. That's likely a lot worse than most aneurysms. She was taken to the hospital and survived the experience, and that was with the medical technology and knowledge of the 1980's and nobody at first having any idea what could be wrong with her. Things can only have improved since then.
I knew one girl who had a severe birth defect in her heart, and two entire chambers of her heart catastrophically burst with absolutely no warning. That's likely a lot worse than most aneurysms. She was taken to the hospital and survived the experience, and that was with the medical technology and knowledge of the 1980's and nobody at first having any idea what could be wrong with her. Things can only have improved since then.
- GlytchMeister
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Re: Good thoughts needed
Holy shit. I... I am struggling to understand how she survived her heart literally popping. That should be an enormous amount of internal bleeding. How the hell did she not die?Catawampus wrote:I knew one girl who had a severe birth defect in her heart, and two entire chambers of her heart catastrophically burst with absolutely no warning. That's likely a lot worse than most aneurysms. She was taken to the hospital and survived the experience, and that was with the medical technology and knowledge of the 1980's and nobody at first having any idea what could be wrong with her. Things can only have improved since then.
Let us know if you need anything, be it a shoulder, a distraction, or a vent.chicgeek wrote:"Tyre patch". Ha! Thanks, Al, I needed that grin!
The edge is off the panic. I can't fret at home, need to be positive for him, you know?
Anyurism is a scary word. And I refuse to look online, and find more fear fodder.
Panic squashed down, y'all got my first 'ohshit' response to the news.
I'll fret, and we'll know more on the 8th.
I mean, they didn't say 'get thee to a hospital RIGHT NOW', so that's good.
HUGS.
Thanks, all.
He's mister GlytchMeister, he's mister code
He's mister exploiter, he's mister ones and zeros
They call me GlytchMeister, whatever I touch
Starts to glitch in my clutch!
I'm too much!
He's mister exploiter, he's mister ones and zeros
They call me GlytchMeister, whatever I touch
Starts to glitch in my clutch!
I'm too much!
- Catawampus
- Posts: 2145
- Joined: Fri Jul 12, 2013 10:47 pm
Re: Good thoughts needed
Good doctors who did the right things with the right equipment, I expect.GlytchMeister wrote:Holy shit. I... I am struggling to understand how she survived her heart literally popping. That should be an enormous amount of internal bleeding. How the hell did she not die?
Re: Good thoughts needed
Thanks, all. Venting here has helped, and big hugs to you all for your kind words.
Re: Good thoughts needed
Good news!
They've decided to do a cat scan every year to keep an eye on it. If it ever reaches a certain size, then they'll talk about surgery. But for now we're a ok!
They've decided to do a cat scan every year to keep an eye on it. If it ever reaches a certain size, then they'll talk about surgery. But for now we're a ok!
- Just Old Al
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Re: Good thoughts needed
Bravo!chicgeek wrote:Good news!
They've decided to do a cat scan every year to keep an eye on it. If it ever reaches a certain size, then they'll talk about surgery. But for now we're a ok!
They will use cat scans to track it with dogged determination.
"The Empire was founded on cups of tea, mate, and if you think I am going to war without one you are sadly mistaken."
Re: Good thoughts needed
*phew*
That has to be a huge relief!
From what you've said about your husband's medical situation, having them decide that he's eligible for "watchful waiting" on this issue is very good news indeed. It really didn't sound as if doing invasive surgery (even for a "tire patch" job) was something he ought to be put through unless it was urgently necessary.
That has to be a huge relief!
From what you've said about your husband's medical situation, having them decide that he's eligible for "watchful waiting" on this issue is very good news indeed. It really didn't sound as if doing invasive surgery (even for a "tire patch" job) was something he ought to be put through unless it was urgently necessary.
And here I thought that you were the one who was objecting to puns today...Just Old Al wrote:They will use cat scans to track it with dogged determination.
- Just Old Al
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Re: Good thoughts needed
That thing you came up with was not a pun it was a crime against humanity.Dave wrote: And here I thought that you were the one who was objecting to puns today...
GLYTCH! Where's that paintball dart gun design!
"The Empire was founded on cups of tea, mate, and if you think I am going to war without one you are sadly mistaken."
- GlytchMeister
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Re: Good thoughts needed
Unfortunately, after fabrication and testing, it has been found to be rather prone to jamming. The sabot isn't playing very nice inside the gun - sometimes a chunk will stick inside the receiver. They're looking into it now.Just Old Al wrote:That thing you came up with was not a pun it was a crime against humanity.Dave wrote: And here I thought that you were the one who was objecting to puns today...
GLYTCH! Where's that paintball dart gun design!
In the meantime, you can always use a regular blow-dart or a normal air rifle made to fire darts... Though they are a bit more difficult and expensive to get...
He's mister GlytchMeister, he's mister code
He's mister exploiter, he's mister ones and zeros
They call me GlytchMeister, whatever I touch
Starts to glitch in my clutch!
I'm too much!
He's mister exploiter, he's mister ones and zeros
They call me GlytchMeister, whatever I touch
Starts to glitch in my clutch!
I'm too much!
- Sgt. Howard
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- Location: Malott, Washington
Re: Good thoughts needed
Phah! 32 gauge special is common as dirt and about as cheap.GlytchMeister wrote:Unfortunately, after fabrication and testing, it has been found to be rather prone to jamming. The sabot isn't playing very nice inside the gun - sometimes a chunk will stick inside the receiver. They're looking into it now.Just Old Al wrote:That thing you came up with was not a pun it was a crime against humanity.Dave wrote: And here I thought that you were the one who was objecting to puns today...
GLYTCH! Where's that paintball dart gun design!
In the meantime, you can always use a regular blow-dart or a normal air rifle made to fire darts... Though they are a bit more difficult and expensive to get...
Rule 17 of the Bombay Golf Course- "You shall play the ball where the monkey drops it,"
I speak fluent Limrick-
the Old Sgt.
I speak fluent Limrick-
the Old Sgt.